Please help – yell it from the rooftops!!

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Sunday, August 24, 2014



As some of you may already know my son has Hemophilia A a blood disorder that prevents bleeds from forming a clot, this is lifelong illness with no current cure.   The treatment to keep Ty at "normal"clotting levels is giving him an IV factor replacement drug 3 times a week.  Chris gives this to him before he leaves for work around 5:30 am.  Ty takes it like a champ, we are so excited for him since he is starting to learn how to self infuse and care for himself, pretty impressive for a 7 year old!  This wouldn't be possible without our chapter Rocky Mountain Hemophilia.  This group serves families in Wyoming and Montana we hold education days and family camp once a year.  Here our families get together, bring in educators to teach the parents and youth how to deal with the many issues that arise with chronic illnesses and form relationships that help Ty get through tricky times, where he otherwise would have felt like the only kid in the world dealing with certain problems.  This chapter also has a patient assistance fund to help families that may be in need due to medical expenses.  It has made a huge difference in our lives.  We are holding our major fundraiser on Sept 6th at the zoo, it is our first year in Billings and we would love your support!  Please go to this link to donate and/or join our team Ty's Crew, tell your friends - yell it from the rooftops the more people the better!  We will have a rock climbing wall, face painting, superheroes and free admission to the zoo with registration.  It will be a great family activity just a quick lap around the zoo visit the animals, and support a great cause.  Register and donate ASAP so you can get your very own Ty's Crew 2 t-shirt. Simply Family did a fantastic article on the walk and bleeding disorders - read it here on page 49. forweb  

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